The Coalition For Fairness & Equity In Schools Needs YOUR Help!

A new group has formed in Delaware called The Coalition for Fairness & Equity In Our Schools.  This group is looking for one thing in our schools, as per their Facebook page:

Diverse group advocating for statewide changes to discipline practices to eliminate suspensions for low-level offenses and adopt a restorative approach.

This group was convened by the American Civil Liberties Union of Delaware to help eliminate the “school to prison” pipeline coming out of many of our schools in Delaware, specifically the Wilmington schools.  You can read more about them here.

To this end, they have started a petition which can be found below, and I strongly encourage all to sign in support of this petition.  As a special needs father, I have seen first-hand what disproportionate discipline can create, and so much of what these children are exhibiting are manifestations of their disabilities.  This doesn’t mean it’s a free-for-all, but it also doesn’t mean punish whenever you want, which leads to social stigma that is very damaging for so many students with disabilities.  I have always promoted a simple mantra: work with the disabilities, not against them.  When anyone tries to fight something that is natural, it becomes stressful for all involved.  This can make a minor situation become infinitely worse.  It isn’t just about social groups for students either.  The adults have a HUGE responsibility in this as well.

I have seen multiple videos from other countries where students disabilities are celebrated, not hidden.  The classes and staff are educated on them, and this creates a much more tolerable environment for all involved: the student with disabilities, their classmates, the teachers, the staff, the admins, and the entire school.  Aside from all this, there are very specific laws regarding disproportionate punishments and manifestation determination.  In Delaware, and also under IDEA and Section 504 law, if a student is suspended more than ten times during a school year, the IEP team or 504 team must convene to determine if a behavior was a result of the disability.  A parent can also request this if they believe this to be true in a discipline situation.

What should result from this is the stakeholders involved get together, talk about the issues and behaviors, and the school psychologist should do a functional behavioral analysis.  Based on the results of this, a behavior intervention plan should be established with all parties agreeing, not just the administrators of the school.  And I would caution parents to be very careful about the wording of these BIPs as they are called.  I highly recommend knowing your child’s disability to the best of your ability, and find out what is typical or atypical behaviors associated with the disability.

When all efforts have failed, and a parent feels their efforts for their child are not being met, that is the time to take further action.  There are numerous things you can do, but one I do NOT recommend is taking that action through the Delaware Department of Education.  Their best solution seems to be “mediate” which is good, but this can also stifle your rights for your child.  Sometimes, as many special needs parents can attest to, you have to fight for your child.  The DOE methods of resolution do not have the best odds of working to your child’s benefit.  I’m sure they would disagree with me, but the bare fact that there have been NO due process hearings in Delaware for two years and a smattering of administrative complaints over a ten year period is testament to this fact.  Their way just doesn’t work.

Furthermore, the number of special education lawsuits when parents reach their wits end (not to get rich quick, that is NOT what happens with these lawsuits) has skyrocketed in Delaware over the past few years.  This is a more proven resolution method for far more parents than the DOE has ever helped over  the past decade.  In fact, many of the curriculums and specific IEPs the DOE wants (which are not part of approved federal IDEA law as brought before the U.S. Congress but resolutions and regulations tacked on by the US DOE with no Congressional approval), will wind up being more harmful to many students in the coming years as they are forced to adapt to national standards that are controversial at best, culminating in standardized assessments that on the surface purport to close the achievement gaps, but will in actuality further widen them.  This will in turn bring in more “consultants” and “non-profit companies” who need to  help these “failing” students.  All the while, teachers who don’t have the proper resources and are dealing with very large classrooms will be evaluated based on these high-stakes assessments.  This is why I don’t trust the DOE, and why any special needs parent should be very wary of them.

But back to this coalition, I am in full support of this group, and this is very needed in our state.  I just wish I had known about it sooner!  I would strongly encourage this group to take a very strong look at various disabilities and the neurobiological events that take place when so many of these “behaviors” occur, as well as the exponential increase of them when unneeded stress is placed on these students from the adults in the school.

Delaware School Districts, Charter Schools and Vo-Techs Special Education Ratings By The Delaware DOE. State Ratings By The US DOE.

The Delaware Department of Education recently sent letters to every single school district, vocational district, and each charter schools with their special education rating based on compliance indicators with the United States Department of Education Office of Special Education Programs.  There are four designations: meets requirements, needs assistance, needs intervention, and substantially needs intervention.  I will be delving into more of this in GREAT detail, as I don’t agree with much of this.  This is based on compliance from fiscal year 2013, so any schools that opened in FY2014 or FY2015 are not part of these ratings.  But for now, please see what the district ratings are:

Traditional School Districts

Appoquinimink: Needs Assistance

Brandywine: Needs Intervention

Caesar Rodney: Needs Intervention

Cape Henlopen: Meets Requirements

Christina: Needs Intervention

Colonial: Needs Assistance

Delmar: Needs Intervention

Indian River: Meets Requirements

Lake Forest: Needs Assistance

Laurel: Needs Intervention

Milford: Meets Requirements

Red Clay Consolidated: Needs Intervention

Seaford: Needs Intervention

Smyrna: Needs Assistance

Woodbridge: Needs Intervention

Vocational Districts

New Castle County Vo-Tech: Meets Requirements

Polytech: Needs Assistance

Sussex Tech: Meets Requirements

Charter Schools

Academy of Dover: Needs Assistance

Campus Community: Needs Assistance

Charter School of Wilmington: Meets Requirements

DE Academy of Public Safety & Security: Meets Requirements

DE College Prep: Meets Requirements

DE Military Academy: Meets Requirements

East Side Charter: Needs Intervention

Family Foundations Academy: Meets Requirements

Gateway Lab School: Needs Intervention

Kuumba Academy: Needs Assistance

Las Americas ASPIRA Academy: Needs Assistance

MOT Charter School: Needs Assistance

*Moyer: Needs Intervention

Newark Charter School: Meets Requirements

Odyssey Charter School: Meets Requirements

Positive Outcomes: Needs Intervention

Prestige Academy: Needs Intervention

Providence Creek Academy: Needs Assistance

*Reach Academy for Girls: Needs Assistance

Sussex Academy: Meets Requirements

Thomas Edison Charter: Needs Assistance

*means school is now closed as of 6/30/15

There you have it, all the districts, charters, and vo-techs in Delaware.  Anyone with a basic knowledge of Delaware can see the obvious flaws with this rating system.  Most of the districts and charters who “need intervention” have the greatest populations of special education students, as well as the highest number of minorities and low-income populations.  This system is completely unfair to any parent looking for potential school choices for their special needs child.  Or even to those parents with a “regular” student, who may think the school is not a right fit for their child because of perceived special education issues.

These ratings also do not take into account IEP denials at all.  Many charters have flat-out refused entrance to children with IEPs, despite numerous warnings by the state and the federal government, as well as civil rights groups, such as the American Civil Liberties Union.  Charters have also been widely known to practice “counseling out”, where students with IEPs are either kicked out or pushed out through repeated suspensions or strong suggestions to parents how they “can’t service your child” or “we don’t have the resources”.

For a school like Charter School of Wilmington to “meet requirements” when they have a literal handful of IEPs there, while a school like Eastside who has numerous IEPs to need intervention is not a fair and accurate comparison.

One other important factor is none of these ratings take into account the continuous and growing number of special education lawsuits in our state.  The feds ratings are based on complaints, mediations (with the state) and due process hearings.  There are several problems with this.  First off, there hasn’t been a due process hearing in Delaware in over two years.  The last hearing was in April of 2013, and out of the 25 due process hearings since 2006, only two were against charter schools.  Anyone with a basic knowledge of Delaware Online Checkbook can see the MILLIONS of dollars going out in special education lawsuits.  When I asked MaryAnn Mieczkowski, the Director at the Exceptional Children Resources Group at the DOE about this conundrum last summer, she stood by the due process system as being “more than fair.”  Many of the schools that “meet requirements” have been sued and more than once.  But the DOE will never report that data…

Second, the complaints are heard by “hearing officers” who are paid by the Delaware Department of Education.  One such hearing officer is the President of the Governor’s Advisory Council for Exceptional Citizens, Robert Overmiller.  He was paid $10,000 this year alone to rule on these special education complaints.  The Director of the Exceptional Citizens Resource Group at the DOE sits on the very same group.  Overmiller is also paid by the GACEC.  The GACEC issues opinions on matters such as the recent and growing opt-out movement.  Many were shocked to see the GACEC dead set against opt-out and House Bill 50.  But now we know about conflicts of interest where the state Department pays the other state group’s Presidents, and the two side on issues of legislative importance.  As well, the GACEC gives opinions on State Board of Education regulations.  This is the problem in Delaware with conflicts of interest.  They aren’t transparent until someone happens to stumble upon them.

There is so much more to all of this, and I will be writing a lot about it in the coming weeks. In the meantime, you can read each letter sent to these districts, vo-techs and charters here: District And Charter Reports

You can also see each state’s ratings below, in the below document released by the US DOE, which is also very misleading, because it rates Delaware as “needing assistance” in the Part B determinations for one year, and “meets requirements in Part C, but doesn’t even touch on the fact they were “needing intervention” the past two years, which makes Delaware look better on a long-term basis when that is not the case.

Delaware DOE: The Eye of the Hurricane in Special Education

In a hurricane, everything is wild and chaotic.  Winds are fierce, rain is massive, and destruction looms.  Many people flee, but some stay hoping for the best.  Homes are destroyed, roads are flooded, and lives are frequently lost.  In the middle of a hurricane, everything is calm.  It can sometimes be sunny, and rain may not be present and it can be viewed as a moment of peace.  The eye is the center of the hurricane, and everything that happens is a result of the eye.  This is the Delaware Department of Education in regards to special education.

Meet Kathy Willis, A Delaware Advocate For Children with Special Needs #netde #edude

 

I have the extreme pleasure of posting an interview I recently had with Kathy Willis. Kathy is an advocate for children with special needs and disabilities in the state of Delaware. She has attended several Individualized Education Plan (IEP) meetings to support parents in helping to get the accommodations their children need in IEP and 504 plans. I met Kathy last month through Kilroys, and I believe she is a great person in our state to help our children. Kathy’s story is below, and she has gone through several of the same struggles many parents have in Delaware. But she turned dark times into something positive that has been truly beneficial for parents. I don’t know if the DOE and the state government realizes how many of us are out there, trying to champion this cause. It can be as an advocate, or a blogger, or as a parent attending a support group. Without further ado, please meet Kathy Willis!

I understand you have children with disabilities. Did you have any struggles with any schools in Delaware?

I have two children with disabilities. My son has Asperger’s Syndrome, Sensory Processing Disorder, ADD, severe casein intolerance (casein is a protein in milk), expressive language delay, and medical issues. Also, to make it even more complicated he is twice exceptional, which means he is gifted with a learning disability. My daughter has mild to moderate dyslexia, and has an average to above average IQ.

We have had problems with both of their schools.

My story started with my son. We always knew he became extremely stressed during the school year. He was never a behavior problem, but he hated school to the point it made him physically sick. We home schooled off and on most of his life because of his severe anxiety. In 9th grade, he went to a charter school, and he was so incredibly stressed that he would literally rip his fingernails off to the point he would bleed.  He would spend hours upon hours doing his homework, and he would literally hit his head and say “I am just so stupid.”

We actually wanted to bring him back home. He was happy and content when we homeschooled him. He was incredibly bright and easy to home school. However, he decided he wanted to stick it out at this charter school. We supported him in this decision, but we grew more and more concerned as his anxiety increased. In November of 9th grade, he had a serious medical issue with rapidly developing pectus carinatum. He had numerous doctor visits, including a trip to the New York area for a brace fitting several times.

I had been in touch with the school’s Educational Diagnostician (ED) after a teacher referred her to me. She seemed nice, and at the time I actually trusted her. I actually updated her on my son’s medical condition during our visits to see specialists as far as California, and thought of her as a friend at the time. I had asked several times to have him evaluated, and that I knew something was wrong. I grew frustrated, as she seemed to ignore my requests for months. I began to study Delaware special education laws and Wrightslaw (link to http://www.wrightslaw.com/)

I finally put my request for an evaluation in writing, and she finally did a very basic and completely lacking evaluation. In the end, he basically scored 4 years ahead in most areas except written expression. (I guess I did a good job with homeschooling!) Due to his disability, he was on a kindergarten level in written expression. I didn’t know much about what this meant at the time, but when the ED suggested he sit with her to learn basic grammar at lunchtime, I knew something was not right. He had scored four years ahead in basic grammar, sentence structure, and spelling so how would learning basic grammar help him? It just didn’t make sense. At first, I politely said that I did not agree, and paid for an occupational therapy (OT) evaluation independently. We learned he had many deficits, and we paid over $6000.00 in OT to help him. The school later hired an OT of their own to write a report on our OT’s evaluation, which of course she disagreed with. The ridiculous part was that she had never met my son, nor had she ever evaluated him. I personally think she should lose her OT license.

The story grew from here as my son’s struggles increased. We started noticing that he was getting all A’s and B’s, but he was not completing assignments because he was unable to do it. His nature is to please, and despite hours of trying he couldn’t express himself in writing. He could answer a multiple choice with almost 100% accuracy, but he could not write about the same information. Assignments that were supposed to be five paragraphs long, he would only write two sentences and get an A+. I really grew concerned because he was still so stressed and he knew he wasn’t able to do the assignments, and a teacher told me that I needed to be concerned because he would never make it in college.

I began to request that he have some help with his writing. I was so naive at first that I just asked for a few minutes each week. I was repeatedly denied. We finally hired an advocate, and she was appalled at the behavior at an IEP meeting. The ED denied saying he needed instruction in basic grammar despite it being written in the actual evaluation as a recommendation. She accused me of only wanting a 504 plan, and that I refused an IEP despite literally 100s of emails begging for help. I even told her that I didn’t understand the difference in an IEP or a 504 plan.

We had an Independent Education Evaluation (IEE) completed that stated he needed an IEP for a learning disability in written expression. However, the IEE also stated that his grades were good so it was questionable how much he needed. We later found out that the teachers had lied and provided false information to the evaluator. I am so thankful for the Home Access Center, and we were able to print out his actual grades. I found that at one point he was missing 13 out of 23 assignments, but still had an A+ in his English class. I saved every assignment and grade, and found that he was only writing the two sentences for five paragraph essays. He was graded A+ for those papers. It was unreal what they were doing to keep from helping him.

There were so many dirty things done to make it look like he was faking his disability and/or to cover it up. We fought literally for three years until I was so fed up, and I literally almost memorized state and federal education laws. At the time, it was really hard to find a lawyer in Delaware for special education. I finally filed a state complaint, and the response was outrageous. If you were to read the state DOE response online, you would think that they were right not to rule in our favor. However, the report is nowhere near accurate.

After he was finally given a (ridiculously poor) 504 plan, he was to have OT for written expression weekly. Unfortunately, he did not receive one session for months. I finally filed an Office of Civil Rights complaint regarding the lack of services, ignoring their own and the school’s evaluation, falsifying records, etc. If you do any reading on OCR complaints, you will find that they rarely find in favor of the child. We won hands down, and the school was required to sign a contract with OCR. The 4 page contract required the charter school to obtain training on IEPs/504 plans, compensatory education for my son, and many other things. OCR, which is a federal entity, was serious and made several follow ups.

During the investigation by OCR, which took several months, we again tried to get an IEP for our son. The school finally hired a speech therapist to evaluate him, and even despite her recommendation for an IEP, the ED (who governed the IEP team) refused to do so. The straw that broke the camel’s back was when my son did extremely well on the DSTP, and the ED said “see he doesn’t need an IEP.” When we got home, we asked our son about the DSTP, and that we were proud of him but puzzled on how he did so well. He said, “What???? Who wrote what???” He told me that a special education teacher took him to his office, asked him a few questions, but he could not see what he was writing.

There is nothing wrong with my son’s hands, and no one should have been writing anything for him. We called the state DOE, made an appointment to take him to look at the actual test, and after reading it, he said “I did not say these things.” There were no accommodations to use a scribe, and the state was not even informed that he had one for the test. To be clear, even if a scribe is necessary, they are only to write word for word what the student says. They cannot even add punctuation without the child saying to do so. Of course, we were completely fed up.

The DOE initiated an investigation, which we followed up with a written request for one. The state DOE interviewed everyone involved including our son in our presence. The final report was that the teacher had cheated, and guess what, he did not lose his job. We were told that it was a personnel issue, and none of our business. We do not know why to this day that we did not go to the News Journal.

By the way, my son became so ill from stress that he was on homebound from December 2008 until late September 2009. The ED was still arrogant, and our fight went on for several more months. We filed for a due process hearing, and won in a resolution meeting with a settlement. My son’s senior year was his best year in his entire schooling, and with special education his writing grew from a kindergarten level to a 6th grade level. We used compensatory education to get him individual help, and he is doing well in college. We also got a true IEE, and we learned even more about his needs and disabilities. There were so many dirty things done at that charter school, but it would take me days to tell them all.

What prompted you to become an advocate?

I hate to see a child suffer. I hate it when an adult knows a child needs help, and continues to berate them for their disability. It took me a long time to learn what I know, and how to be smarter than the school so that the child can get the help they need. I believe that by helping another family through this horrible maze, it makes my son’s difficulties seem (a little) worth it. I have helped children all over the state (including PA & NJ) in numerous school districts and in all three counties in Delaware. It brings great joy and healing to see another child helped.

How does advocacy work? Do you need a license?

You do not need a license. You do need to know special education laws, but you have to be careful not to practice the law.

What are some of the most common problems you come across?

Parents don’t understand that they must put their request in writing if they want their child evaluated. They do not know how to read the school’s evaluation, they do not know their procedural safeguard. They don’t know it’s imperative to record all IEP meetings because they trust the IEP team. Children are given accommodations to help the teachers not the child. IEPs are written poorly. The child does not progress and parents don’t know how to monitor progress. Children are denied IEPs. Children’s disabilities are sometimes accommodated but rarely remediated, etc. etc.

It sounds like there are many situations where a child is denied an IEP based on intelligence. Would you find that to be accurate?

Absolutely. It isn’t always an easy task. In my son’s case, he was technically gifted so how could he need an IEP according to the school. This is old school thinking, and it clearly has no place in IDEA.

What is a due process hearing like? A mediation?

Mediation is supposed to be less confrontational with less people than a full IEP team. Also, you request Mediation without filing for Due Process. During Mediation, there is generally a mediator from the University of Delaware that leads the meeting. Any decisions made in mediation are legally binding, but the discussions held in Mediation are not.

Also, I would never agree to mediation AFTER filing for a due process hearing especially if you have hired a lawyer. If the issues are settled in Mediation, you cannot usually get lawyer fees. Generally after filing for due process, the school should offer a resolution meeting. If the issues are settled there, you can ask for legal fees to be paid. I have not had to go to a full due process in Delaware. The two cases I filed were one for my son and one for my daughter and both settled in Resolution. I have had many parents file for due process in Delaware, but all have been extremely strong cases so the school settled in Resolution. The cases settled in Resolution do not get recorded so you will never hear how often this occurs. I have had parents go through and win due process in Pennsylvania. I will say that it is extremely stressful, takes hours and hours of preparation, and you really, really need a lawyer.

Everyone talks about IEPs, but a lot of people don’t know about 504 plans. Have you ever advocated for someone on a 504 plan?

I have advocated for children with 504 plans. It is rare that I think a 504 plan is sufficient. If the child has medical conditions that affect his education, but has no educational or behavioral needs, then and only then might a 504 plan be sufficient.

Many people in Delaware believe charter schools have the most special education issues. Do you believe charter schools have more problems with special education than regular public schools?

Yes, but regular public schools can be just as bad. The cost is high to educate a child with a disability, but they deserve a Free Appropriate Education (FAPE). I have found that those leading and working in charter schools have very little knowledge about special education laws. However, make no mistake that a child with a disability has the same protections and rights as any child does in any other public school.

What do you think of special education in Delaware?

Honestly, we do a pretty good job with early childhood (before entrance into the school system) interventions. However, we absolutely stink once a child gets older.

Do you think schools in Delaware are accurately performing their Child Find duties?

They do a pretty good job with early childhood Child Find, but once a child is in elementary school the identification goes down. They are required to assess in all areas of suspected disability, and you will mainly find the status quo evaluation only has an IQ test and a basic achievement test. Tests only measure what they are designed to do. For example, the most common intelligence test is the WISC, which is based mostly on language. If a child has an expressive language disorder, you could get a very false low score. I have found this to be true on many occasions. It is terrible to be told your child has a low IQ, when in fact they may not. As another example, dyslexia is rarely picked up by these standard achievement tests. There are many, many tests that are rarely used by schools that should be.

What do you think of the report that came out this week regarding Delaware needing Federal intervention for special education?

It’s about time!!

How do you feel about standarized testing and Common Core in Delaware? Do you think all parents of special needs children should have the option of opting out of standardized testing?

Common Core: I can only imagine the number of children struggling with it. I am sure we will never know. As far as standardized testing, well I am on the fence about that one. It can alert parents that a child has a disability and it can also help monitor their progress. I do believe parents should have the choice, but I fear parents will make uneducated choices. If you want your child to succeed in college, they will have to take tests.

What is the one thing you could do over if you had the chance?

I wish that I had learned how to help my son a lot sooner than I did. However, let me be clear, it is never the parent’s responsibility. According to case law and the IDEA, the child find responsibility is 100% on the schools. I still wish I could have helped my kids a lot sooner. I would also have filed my OCR complaint and my due process complaint a whole lot sooner than we did. We wanted them to just do the right thing and help our son. We didn’t want the fight, but we certainly were not going to give up. There are many days I wish I had gone to the News Journal, but our intent was to help our son, not ruin the school. We had a horrible IEP team, but we still believed in the school. There were some good things about the school.

If you hadn’t intervened with the school, where do you think your children would be now?

There is no doubt in my mind that neither of my children would be doing as well as they are in college. I believe they are both on their way to independence. I sincerely doubt my son or my daughter would have ever made of $8 an hour if they were not helped. I also think that both of them would be seriously depressed and their self esteems in the toilet. We have done a lot of emotional repairing and even counseling to help them get over the school trauma.

How are your children now?

See above. 🙂

I want to thank Kathy for her courage in telling her children’s story, as well as many useful tips for Delaware parents. As I have said all along, never walk into an IEP meeting without an advocate, take notes, and save all emails from any school the moment you walk into the door the very first day.

If you are a parent in need of an advocate, please contact Kathy Willis at advocating4kids@yahoo.com