Tim Howard and the USA Soccer Team: Did Tourette’s Help The Team? #netde #edude

Great article from The Daily Beast about how Tourette’s actually helps athletes like Tim Howard.  I see this sometimes with my own son.  He is there one second, and gone the next!  I know certain people who have had to try and catch him at times and I’m sure they were amazed at his quickness.  This is, of course, a shout-out to the folks at that charter school in the County of Kent.

There are so many aspects of TS that haven’t even been discovered yet.  I look forward to more articles like this.  Tim Howard is one of the biggest names in the world right now, and I applaud his ability to openly talk about this TS and use it to his advantage.  I think this is a goal any parent has for a child with a disability.

http://www.thedailybeast.com/articles/2014/07/03/why-tourette-s-may-be-tim-howard-s-secret-weapon-on-the-field.html

8 Year Old Spreads Awareness About Tourette’s Syndrome

What an amazing girl.  To self advocate at this age is a true gift.

http://abc7chicago.com/145993/

Nightswimming

My son and I just went nightswimming in our pool.  The floodlights went off, and I looked up towards the trees and saw the fireflies blinking all over the place.  I looked at all those fireflies and I just paused for a moment.  I thought about all my son has experienced in his life, the hopes and the highs, the downs and the lows, and what it all must mean to him.  My definition of success is much different than his.  When I was his age, college seemed like an eternity away, but I knew it was something I wanted.  For my son, success is sometimes just getting through a day.

I spoke with him earlier today about his tics, and how they feel.  He told me all about his recent tics.  I asked him how hard it is to hold them back, and he told me “I don’t even try anymore.  What’s the point?”  I was so proud of him at that moment.  He is learning to accept what life has thrown at him.  I know it’s not an easy road for him.  Every time he meets someone new, especially his peers, there comes a time when the dreaded conversation has to happen.  About Tourette’s and the tics.  Tics are a lot like energy.  You can try to stop it, but it will always get released.  Sometimes it becomes something different, or it comes out faster.  But eventually, it will happen.

I never dreamed I would have a son with special needs.  His needs aren’t even close to the severity that other folks have, but they are there still the same.  Am I overprotective at times? Lord yes!  If I’m not, or my wife isn’t, who will be?  But sometimes I have to let him spread his wings and fly.  After many years of trying, he finally learned to ride a bike a couple weeks ago.  Since then, he has fallen and received a few scrapes and bruises, but he always gets back up again.  The need to try is greater than the fear.  My little boy is growing up.  Too fast for my liking, but every parent goes through this.

I am watching him now, playing Xbox with a friend, and he is ticcing away.  To this observer, it looks painful, but it isn’t for him.  Trust me, he would tell me.  I’m proud of my little man.  He has come such a long way since this time last year.  Back then, his fear was his constant companion.  It’s still there, but it doesn’t rule his life the way it used to.  I think everyone should have a little fear, otherwise we would do anything we wanted.  And that’s not always a good thing.

My house has other children in it all the time now.  Children who accept him for who he is.  Children who don’t think he is weird or contagious.  I am so grateful this is happening.  Friends are so important to him, and he needs them.  My son has no siblings which was another thing life threw our way.  Sometimes, Mom and Dad aren’t enough.  Sometimes we’re just the “old” people who don’t have a clue.  I wouldn’t have it any other way.

Tonight, I think I’m going to leave him and his friend to have fun, go outside, and watch the fireflies.

Boy With Tourette’s Syndrome Wins Award

As parents, we often see the negatives about our child’s disability. Sometimes though, in this young man’s world, he has turned his disability into something very different. Find out how the whistler boy used his disability to his advantage. A very uplifting story.

Happy Fathers Day!

Happy Fathers Day to all the great Dads out there!  It was ten years ago when I had my first Fathers Day.  My son was only a few months old, but on that day I saw and heard him laugh for the first time.  My wife swears he had done it prior to that, but it was the first time I saw it.  Seeing that was the best Fathers Day present ever.  It’s a great day to be a Dad.  Summer is kicking in, everyone is outside, and the sun is shining.  This year my son made me a card, with all of his awesome artwork, and I will keep it forever!

Today is also the last day of Tourette’s Syndrome Awareness Month, so I thought I would post video about TS to show everyone what these kids go through.  It’s not an easy thing, this TS, but so many kids handle it with a grace that more of us adults should have.  We can learn a lot from them.  One of my favorite phrases I see about TS is “I have Tourette’s, but Tourette’s doesn’t have me.”

I will be finishing my Delaware Special Ed grades this week, along with my first interview with a Delaware special education advocate!

From the HBO Documentary about Tourette’s Syndrome

See how kids who have Tourette’s really feel!