Delaware House Recognizes Tourette Syndrome Awareness Month 2016

For the second year in a row, the Delaware House of Representatives recognized Tourette Syndrome Awareness Month, which takes place from May 15th-June 15th, 2016.  My son Jacob and I attended the legislative session where State Representatives Debra Heffernan and Jeff Spiegelman introduced the legislation.  The House unanimously voted in favor of House Resolution #33.

KevinJacobHR33

Above, Kevin and Jacob in picture taken by Delaware State Rep. Kim Williams.
Below, the House Resolution.

HR80Main

 

Thank you, once again, to State Reps. Heffernan and Spiegelman for this honor for a very misunderstood and confusing disability. And thank you as well to Susan Breakie, the Delaware Tourette Association of America Chapter Leader to inviting Jacob and I to this momentous day!

Jacob got to meet a lot of legislators and even got a lollipop from State Rep. Michael Ramone! Unfortunately, we were not able to meet with Governor Markell this year or get to play with Speaker of the House Pete Schwartzkopf’s gavel.

On Saturday, the Delaware Tourette Association of America will be holding the Delaware Tourette Awareness Walk at Glasgow Regional Park in Glasgow, DE:

Join us in Making a Difference with Every Mile!

The Delaware Tourette Awareness Walk in Glasgow Regional Park was organized to raise awareness and funds for the Tourette Association of America. When you register for the Delaware Tourette Awareness Walk you are supporting the Tourette Association’s mission to make life better for all people affected by Tourette and Tic Disorders! Encourage your friends, family, co-worker’s and neighbors to donate on your fundraising webpage so that we can reach the team’s collective fundraising goal! The funds raised will benefit research, foster awareness, and support necessary programs.Together we can make a difference!

Registration Fees
•Early Bird Registration (Age 13+/Adult) — $25
•Day of Event Registration (Age 13+/Adult) — $35
•Children age 6-12 — $15
•Free for Children 5 and younger

Online Registration is Recommended. Online Registration closes at noon on Thursday May 12th, 2016.

What You Receive

Each participant will receive a Team Tourette T-Shirt in the size of their choice and a Team Tourette medal. There will be free food, drinks, and fun for the entire family!

Event Time/Date

Check-in/Day-of registration will begin at 9:00 a.m. and the walk will begin at 10:00 a.m. on Saturday, May 14th 2016.

Event Location

Glasgow Regional State Park

Rt 896 & Rt 40, Newark DE 19720

– See more at: http://getinvolve.tourette.org/site/TR?fr_id=1090&pg=entry#sthash.6YSsSBcQ.dpuf

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s