Today, the Delaware House of Representatives voted unanimously to pass House Concurrent Resolution #36, which recognizes Tourette Syndrome Awareness Month, running from May 15th to June 15th in Delaware. Sponsored by State Reps Debra Heffernan and Jeffrey Spiegelman, this is the first resolution of its kind for Tourette Syndrome in Delaware.
The Chairpersons of the Delaware Tourette Syndrome Association, Susan Breakie and Pam Levin, both gave stirring and moving speeches about Tourette Syndrome and the discrimination and bullying that occurs in schools for TS students. Levin gave examples of situations TS kids and adults have to endure, such as “stop moving around and do your work in the hallway” when a student is ticcing, or an adult with TS being rejected from a job opportunity based on their disability. Breakie stressed there needs to be more awareness and acceptance of Tourette Syndrome to break the stereotypes concerning the “swearing” disease, and how it is a neurological and neurobiological disease with no cure.
A few children with Tourette Syndrome attended the event, and after the legislative session, they got to meet Governor Jack Markell and received Delaware pins from the Governor. It was a highlight for many of the attendees year to have this very unique and once in a lifetime opportunity!
Especially for this blogger!